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Description
Melanotan-1 (afamelanotide/Scenesse) is the only EMA-approved treatment for EPP, with Phase 3 RCT data showing increased pain-free sun exposure and improved quality of life
Shiraseb F, et al
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Chen S, Zhang Y, Zhou L, Leng Y, Lin H, Kmieciak M, Pei XY, Jones R, Orlowski RZ , Dai Y, Grant S
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Months of treatment may be necessary before maintenance medications can be weaned
